Post by benshelpmeet on Sept 22, 2009 14:47:51 GMT -5
Please go to this site and please read the whole thing...it will touch your heart so deeply for this very precious young couple. 
I am broken hearted over their situation and I'm going to commit this dear couple an little boy to much fervent prayer.
She has such a great attitude and strong resilient faith. Precious young girl...Bless her dear heart. I wish I could lighten her load and encourage her in some way, her husband as well.
We have have so very mush to be thankful for.
Please Pray much for this precious young family!
patriceandmattwilliams.blogspot.com/
I am a child of God, a wife to a super great guy, and a mother to the two most beautiful little boys. Our first, Gabe, was stillborn at 37 weeks. He was only here with us a short time, but we treasure every single moment. On 2-27-09, I gave birth to our second son, Jonah, who was born with an extremely rare genetic skin disorder called Epidermolysis Bullosa. Jonah is now at home after 32 long days in the NICU uncertain of his future. He has been diagnosed with Junctional EB, which can have a good long-term prognosis or can be lethal in the first year of life. The experts are fairly confident Jonah has the less severe form, although the biopsies were inconclusive. He faces a life of painful blisters, hair, nail, and major teeth issues, as well as the possibility of respiratory involvement. Jonah is literally point five in a million. We suspect EB is the cause of Gabe's death. We know that no matter what happens with Jonah, God will be glorified. We can't wait to see Gabe in Heaven and can't wait for Jonah to meet his big brother a long, long, long time from now after he's old and gray and lived a long, full life. Please pray for a miracle for Jonah. We are.
I am broken hearted over their situation and I'm going to commit this dear couple an little boy to much fervent prayer.
She has such a great attitude and strong resilient faith. Precious young girl...Bless her dear heart. I wish I could lighten her load and encourage her in some way, her husband as well.
We have have so very mush to be thankful for.
Please Pray much for this precious young family!
patriceandmattwilliams.blogspot.com/
I am a child of God, a wife to a super great guy, and a mother to the two most beautiful little boys. Our first, Gabe, was stillborn at 37 weeks. He was only here with us a short time, but we treasure every single moment. On 2-27-09, I gave birth to our second son, Jonah, who was born with an extremely rare genetic skin disorder called Epidermolysis Bullosa. Jonah is now at home after 32 long days in the NICU uncertain of his future. He has been diagnosed with Junctional EB, which can have a good long-term prognosis or can be lethal in the first year of life. The experts are fairly confident Jonah has the less severe form, although the biopsies were inconclusive. He faces a life of painful blisters, hair, nail, and major teeth issues, as well as the possibility of respiratory involvement. Jonah is literally point five in a million. We suspect EB is the cause of Gabe's death. We know that no matter what happens with Jonah, God will be glorified. We can't wait to see Gabe in Heaven and can't wait for Jonah to meet his big brother a long, long, long time from now after he's old and gray and lived a long, full life. Please pray for a miracle for Jonah. We are.
